Dear Friends and Family,
We know you love us and want us to be happy. We hope that this will help you understand the pain we are feeling.
A couple is considered infertile after trying for one year. We are now past the 2.5 year marker. Every month we wonder whether this is will finally be our month. If it isn't we wonder if we can munster up the energy to try again. Infertility is like an open wound that just when it starts to scab over, the scab gets ripped off again.
The truth is, there is practically nothing concrete you can do to help us except, be supportive and understanding or if you would like to help financially, we will accept any donations. It is hard to ask for help (money) but when you are put in this situation you sometimes have to throw your ego and personal beliefs out the window and accept whatever people are willing to give. IVF is going to cost us approximately $15k and we have no idea what our outcome will be. It's literally like walking up to a craps table and throwing down $15k and praying we get the right number. It scares us to death to not know the outcome.
With IVF we will endure repeated doctor visits, take daily injections (up to 3-4 shots per day), shuffle work and social schedules to accommodate various procedures, and lay out considerable sums of money we don't have. All of this is preceded by a battery of diagnostic tests that can be embarrassing and extremely painful.
Then there is the infamous wait to find out if it worked.
While trying to cope with this emotional turmoil, we get invited to baby showers, and we learn that friend after friend and family member is pregnant. We are approached by beaming new parents who want us to hold and appreciate their baby. As happy as we truly are for them, inside we are forced to swallow the rock in our throats, ignore the pit in our stomachs, and fight off the tears until we are alone and can let it out without being embarrassed by our emotions. Trying to imagine our envy, our rage over the inequalities in life must be difficult. Infertility fills practically every facet of our existence.
Just as an ordinary room can be an obstacle to a blind person, so can the everyday world be full of hazards for infertile couples--hazards which do not exist for men and women with children. The mall, restaurants, pretty much any public place where kids might be has become a place of avoidance. Going to a baby shower is painful but so is distracting ourselves from social occasions celebrated by our friends and family. Christmas is an example of the many holidays that are particularly painful/difficult for us. They are not only a reminder of what we don't have but also mark a passage of time. We remember what came to mind last Christmas- that the next year we would have a new son or daughter to share with our family. Each holiday presents its own unique burden. Valentines Day reminds us of our romance, love, marriage, commitment- and the family we may never be able to create. Halloween is a reminder of the costume we may never buy. Mother's Day and Father's Day ....their difficulties are obvious.
Everyday activities like a walk down the street or going to the shopping mall are packed with land mines. Seeing women pushing strollers or a father outside playing with his son strikes a raw nerve. While watching TV, we are bombarded by commercials for diapers, baby food, and pregnancy tests. We are constantly being asked how long we've been married and whether we have any kids? We feel like running out of the room but we can't. If we talk about being infertile we are likely to get the words that sound like nails on a chalkboard, "just relax, don't worry- it will happen soon", or "you're lucky, I've had it with my kids. I wish I had your freedom." These are the kinds of comments that make us want to crawl under the nearest rock and die.
Because we are infertile, life is extremely stressful. We are doing our best to cope. Please be understanding. Sometimes we will be depressed. Sometimes we will be angry. Sometimes we will be physically and emotionally exhausted and sometimes we will be incapable of being around babies/kids. We are not the same D & A we used to be. We don't want to do many things we used to do. The only way we can begin to describe our pain is to have others look at their joy. Think of the joy that you have felt when you found out you were pregnant, when you heard the heart beat for the first time, when you felt your baby kick, when you experienced the miracle of birth, or saw your child take their first steps....take all of that happiness and turn it around so it's the exact same intensity but instead in pain.
We have no idea when or if our problem will be solved. We are going to test Adam one more time at his 6 month surgery anniversary to confirm our decision to proceed with our one and only chance at IVF. We have no idea of the probability of success.
Hopefully our IVF will be successful. Or maybe someday we will give up on having children and just learn how to live childless. At present we have no idea what our future holds. After reading this letter we hope you have a better understanding of how hard this is for us. The most important thing to remember is please listen to what we have to say and don't judge us. Do not belittle our feelings. Please don't try to pretend that everything will be okay, because we don't know if it will or not. Infertile couples feel cut off from other people, but your ability to listen and support us will help us to handle the stress we're experiencing. We love you and appreciate all you do for us.
Love,
Debra and Adam
2 comments:
I'm really glad you started this blog. I have a hard time knowing what to say, how to avoid saying the wrong thing, and end up not telling you so many things to try not to hurt you. I want you to share in the lives of your niece and nephew, but understand that even sharing milestones in their lives is difficult for you as you feel the loss of what is not in your life.
Call me if you want to talk.
Love,
Bri
Hi, I'm a friend of Brianna and Jeff's. I read your blog entry and know intimately what you and your husband are going through. My husband and I struggled with infertility for three years. It was unknown if it was male or female factor so they just kinda shot gun blasted us with tests and offers of all kinds of treatments.
Anyway, I want you to know that you're not alone.
I put a moratorium on baby showers and visiting people in maternity wards for at least a year because I just couldn't do it anymore. You have the right to say 'no thanks' to any and all invites from family and friends; I just want you to know that. It's ok to say it's too hard.
I don't know where y'all live, I and my husband are in Seattle, but we'd be very happy to meet you for coffee or maybe just you and I for coffee. It helps to have people around you that really know what's happening, someone to call when you're crying your eyes out for no apparent reason, or when you've had an emotional breakthrough.
I read something in all my research on fertility that said "If you truly desire to be a parent, you will be, one way or another". I hated the last part of that quote, but it did give me courage and peace. Adoption was a road we considered very seriously, and I was heartbroken to have to. Don't think about that yet, is my advice, concentrate on now. We were able to conceive, and it was when we were about ready to throw in the towel. I know you're going through a financial bind and I would like to help in a small way if I can and if that would be alright. It's criminal that fertility treatments aren't covered; I mean seriously!? Anyway...
It feels very lonely, this unchosen path. I wouldn't wish it on my worst enemy. I kept a blog too and I'll include the link; it may help, maybe not. And I may be WAY overstepping my bounds, I don't mean to. I just know how lonely I felt through all this. And I don't want anyone else to feel that way. I didn't have one friend or family member that had ever gone through this and we were too broke to afford the support groups we found.
It's hard to take comfort from those with kids; I wanted to smack them all across the room and shout abscenities at them.
In the end though, don't forget them. They love you enough to at least try. Briana was there for me as much as she could be; it was really hard to see her with her son. But she tried and cared a lot about me. Looking back, I'm really grateful for that.
My email address is: trishheinrich@gmail.com Please feel free to contact me for any reason at all; advice, venting, meeting for coffee, telling me to stay out of your life, etc. And if you need to actually talk I'll give you my phone number if you want it, just let me know.
Once again let me say: YOU ARE NOT ALONE.
http://hopefulandstillwaiting.blogspot.com/
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